Dear friends,
It’s been a while since I’ve updated and so so much has changed. This is a long and vulnerable, very personal update, and I hope you can make the time to read it. The short and honest truth is: I have been struggling so much. I have been terrified, doing far too much on my own, stretching myself thin, have experienced inadequate housing and support and have been in a lot of physical distress and pain. I haven’t had the strength to share for quite some time. I am in great need for further support physically and financially to continue to face this aggressive and life-threatening illness. The last couple weeks I truly haven’t known how much longer I will be here on this earth, especially with everything else I have been facing, aside from the cancer.
I’ve had this reflected a few times now, that when I am not writing and sharing what’s going on, people's hopeful default is that they assume I’m surrounded by love and support. I keep getting sweet messages that people are picturing me that way and I need everyone to know that my overall experience as of late has been that I’m terrified, alone, exhausted, and watching these tumors grow every single day, getting bigger and redder in my skin, pulling my nipple down. My nipple is folded over itself, moist and underneath it smells like rotting. I do have friends with me again, for the week, who are cooking, cleaning, loving me up, moved me into a new place, and supporting me enough that I finally have the time to share. I started writing over a week ago, (rather, I spoke this into a recording and my friend Z transcribed) but already so so much has changed and it’s so much work to edit it all over again. I’ll do my best, and my hope is that with this long update I can get back on track and share more easily in shorter more frequent doses. That is, if I continue to have support again, which I have felt to be far too lacking over the last few weeks.
Up until near the end of October, I had been staying at a sweet farm outside of Sebastopol, at a place with such sweet and generous friends, Aubrie and Scott, who have put me and Jimmy up along with our two dogs, for months. It has been an incredible blessing, I am told I am always welcome there and it has been so wonderful to be there. But it’s a small place, and they are busy, and once the rains started and my health crisis escalated I realized that I was too isolated and not able to eat or take care of myself. Jimmy had been coming and going, traveling back and forth between the farm and southern Oregon, but left about 2 and a half weeks ago; we weren't able to be the care for each other in ways that we needed- we both need more consistent support, to be held in a web of care. He is also working through a very intense health issue since an acute tick-borne illness left him hospitalized in near liver failure back in January. He has been with my dog Jada, which is so incredibly supportive because I can't care for her or myself right now.
There has been such kind company and ambient support at this place and we have shared so many laughs and deep moments in these hard times. But it came into focus that this place is too far away and too small to host more direct support for me. With my escalating health needs, and need for more focused support, I’ve had to come to terms with the fact that I need to be in a place where me and my care is the focus and there is room to hold and host more people to support me and there just isn’t the space there.
I want to share more of the back story of what has been going on the last while that I have not, until now, had any capacity to share. I have realized I want to implement a new protocol for support and how to orient to what is going on for me: if you aren’t hearing updates from me, and unless you hear from me that I am doing well and getting AMAZING support- please assume otherwise, that I am stretched and in great need, and have no capacity to share what’s going on and struggling to get my needs met.
I’ve been going through a really intense experience. I have been barely sleeping for weeks and weeks and am in increasing amounts of pain as the tumors in my chest are growing. I haven’t shared an achingly painful piece publicly until now: On the anniversary of my mom's death, October 11th, I found out that I was pregnant, which is something that I've wanted so, so badly. A few days later, Jimmy left for up north. A week and a half later, I found out through a FNA (fine needle biopsy) that the lumps in and around my nipple are cancer recurrence as well as metastasis to further lymph nodes- one confirmed in my collar bone.
As much as I wanted to share this news, I was so disheartened at different times when I would tell various friends or practitioners and get responses such as: “CONGRATULATIONS!! HOORAY!” No. That was not the feeling, and not what you say to someone in the throes of a life-threatening illness when they tell you they are pregnant. I felt a deep heartbreak, longing, and despair for the reality of my life situation: that as much as I yearned it to be so, I could not continue with this pregnancy. I had to start curating how I told the few people I could. I felt afraid to share because of the variety of judgements for my choice if I either continued to maintain or terminate the pregnancy. I became fearful for the support I might lose if I chose either path. The symptoms of the pregnancy were getting so intense, I could not continue with any more of my treatments, I could not eat the specific foods that i was trying to eat, could barely eat anything for a while. I had to ditch everything and just eat biscuits and gravy and pasta and whatever I could keep down. I cannot describe the feelings I experienced while watching my body change and grow and swell with pregnancy, while also watching the tumors grow redder, and my nipple get crustier and more unhealthy every day. Walking between the worlds of life and death.
I was told by some baby-crazed high risk OBGYNs, nurses, naturopaths, etc. that I could keep this pregnancy. That pregnant people can get chemo and it is has no effect on the growing being because of the protection from the placenta. I considered this option, thought maybe one of the reasons this baby showed up was to take myself out of the way and do chemo. No. Once I spoke to the Oncologist at UCSF she clarified that chemo is used in third trimester when cancer is discovered during pregnancy, to buy a little more time. Often still resulting in pre-term labor and complications. It would be a huge risk to both me and this baby to attempt anything like that, and I would have had to wait another 18 or so weeks to even begin. I just couldn’t.
On October 26th, with community support- asking folks on instagram to throw down- I took myself out to a much-needed retreat in Calistoga for what I thought would be a couple days. I realized that I just didn’t want to leave because I was finally able to access food and a bathtub and a place quiet and spacious enough to process my emotions, lie on the floor, wail and freak out and realize the reality of my situation. Since then, and until this Friday, I’d been packing up in my truck every few days, moving into whatever hotel I can find that's affordable and then moving back into the ones in Calistoga because they have weekly discounts during the middle of the week that I can actually afford.
On November 2nd-3rd, between the gates of Samhain, on Dia de los Muertos, I had an incredibly, incredibly beautiful ceremonious birthing termination that was one of the most profound things I've ever moved through in my life. I called upon beloved friends to be with me and was supported with so much love and strength from 2 of my dear friends Chloe and Chloe. Before this experience, we were community members, friends who knew and appreciated each other, but had never had much intimate time together. We all came away forever changed, profoundly bonded, deeper than family, forever.
Just two days later, we packed up and left. My soul was ripped to pieces. Chloe and Chloe busted out their magic and found me an affordable rental for the weekend. I picked up my free food delivery, along with groceries the Chloes bought me, collapsed in the lap of my acupuncturist in tears, then went onwards to my weekend hotel stay at “The Woods” an LGBTQ hotel in Guerneville. It was lovely but so exhausting moving my things into a new place once again. Everything has been too much. I rested in a cozy room for three nights, watched ravens perching in redwoods out the window, rainbow flags blowing in the wind. I reached out to friends to help me find a longer-term rental that could have the space for me to be on my own, and welcome support when I need it- where those supporting me can easily do so: with their own space- an extra room. Oh things have just been so so much for my dear little body. Moving through such a powerful experience and uprooting every few days to find a place of quiet and respite where I could be with myself, be with this being who I asked to depart. I’ve been a wreck, in so much pain and terror. Beloved friends came through and gathered money together to pay for me to rent an Air BNB for the whole month in Calistoga. My friends Janine, then Tyler and Monet showed up to help me move out and in, for maybe the 5th time in 2 weeks.
I’m finally able to breathe and receive the support I have so desperately needed, and in a place that I absolutely love. A lovely friend in Utah footed the bill for the month. I want to stay here for another 1-3 months, it’s far too expensive for me to afford on my own. I’m so so tired of moving. I’m happy here. I can walk around this little town and get what I need, and it’s the same distance to appointments as before. These last days I have finally found myself just barely on the other side of constant distress and terror. We have been searching exhaustively for something more affordable that is equally as accessible for me and my needs, and to host caretakers. This is a small 2 bedroom for 4k a month. I have been offered trailers on people’s land, far away. I’ve been offered spare music rooms or living rooms. No. I just can’t do it. I can’t keep feeling like a couch surfer while I’m facing the most intensely straining thing in my life, while I need nothing more than a place for sanctuary and healing. I’ve lived the majority of my adult life in trucks, wall tents, trailers, shanties and cabins far away. We all know I can do it and I love that life. But I have to accept that I just can’t right now.
There is more I feel compelled to share, that feels just as vulnerable to share as the pregnancy. Something very painful, that completely threw me, and I believe has contributed to me being in this chaotic situation I’ve been in the last while. Here goes…
I’ve been able to do a lot of processing in the last while, in this time being on my own and preparing myself to end the pregnancy, and really come to terms with the times immediately after my surgery, that I was in a really, really horrible situation. It’s still too painful, complex and difficult to share details, and I don’t think I need to share in this format. It was absolutely NOT everyone there, but we did have to leave the place that was arranged for me to be taken care of after surgery because it was so awful, and we were disoriented and unable to realize just how bad it was. The very wonderful support and care that I did have there was either neutral and holding space in the dynamics or so caught up and stretched in trying to manage the situation and protect me from harm they were not able to care for me as well as I needed and deserved, and as well as I believe they could have under different circumstances. It was awful, scary, confusing and left me feeling betrayed, hurt, and scared of speaking about my experience, and scared of welcoming greater in-person support into my life because of how damaging that time was. I say this not to create blame or discussion about what was going on for those who I was hurt by, and I ask for this not to turn into a courtroom of judgements or blame or sides.
I am doing my best to share what I need to share because it is important for people to know that I went through something traumatic at a time of great need, dependency and vulnerability when I know so so many of you all wished and believed I was receiving wonderful support. I came away from this time believing many awful things about myself, and I shied away from receiving support because I couldn’t trust it, and felt that I didn’t deserve it. It touched into deep familial and relational wounds and beliefs about me being crazy or unworthy of the care I asked for- which was essentially basic gentleness, care, ease, respect for my process, and support with meals, water, and walks. I have been processing this time with a few people that I feel safe with to do so. I have realized that those experiences were like a dam I have been caught behind- unable to access a lot of other emotions or receive the support I need until I was able to finally start working through and talking about that time.
I feel scared even to share this, for fear of backlash from some of these people or mutual friends. I ask to please hold us all in this tenderness, even the ones who I was hurt by, as I know that in times of great stress that challenging things come out. Please honour me and us all by holding that this is really complex. People get overwhelmed when facing loved ones struggling, as well as going through their own struggles. I needed to remove myself because my boundaries were not respected, and neither were some of my most intimate loved ones. Please know that I experienced a lot of painful and really inappropriate things that took a lot of energy from me and others to maintain emotional safety at this time. But we got away, and I am healing these wounds and finding the power in discerning what is welcome or not welcome, what is helpful and what is harmful in my space. I am finding my voice in what I need and since I have finally been able to start working through this time, I have started to open to more active and intimate care again.
This is not a discussion of sides, or right/wrong. I welcome empathy; for there is pain, and there are wounds. I welcome invitations for me to share personally and privately to help me move through what I experienced and get it out of my body. I do not welcome gossip, assumptions, judgements or conclusions. I hope that by naming this, I can break through the dams and begin to share again, as I have since re-learned that I am, in fact, worthy of support. I can be needy, scared, confused and imperfect and receive the care I want and need.
Jimmy and I left for a weekend to get a break and stay with our friends outside of Sebastopol. When we told them what had been going on, they urged us to pack up and leave and never go back, we were welcome with them. Thank goodness to them. I cannot imagine what one more night in that place would have done to us. They welcomed us as we were, had no expectations of me or either of us. Jimmy continued to show up as long as he was able to and will again with more community support. This is a web, and my tenders need to be tended to continue. When my dear friends “the Chloes” came it was so incredible because I was able to be exactly who I was. A mess, grumpy, chaotic, full of need and pain, and of course brilliance, and magnificence and pure magic!!! I was able to make a face and say: "I don't want that", and it was fine and it was beautiful and they loved me consistently, and held me with incredible strength and grace through one of the most beautiful, profound and painful experiences of my life. Now, my friends Tyler and Monet are here caring for me for the week, and they are quite a team! Not only am I brought three nourishing meals a day, handed glasses of water before I can think of it, and driven to all my appointments, my despair and fear is welcome. My confusion, my particularities. This morning, I panicked and couldn’t find an herb I always put into my morning drink; it had been moved. I searched and searched, and finally knocked on their door and woke them in a panic. I was met with loving understanding: I was reminded that of course I was upset and wanted my thing, it’s okay to be anxious and demanding when I’m scared.
I feel compelled to share all this because I have been holding the experiences from around my surgery with such pain, I’ve been frozen. Up until recently when I was basically desperate, I have pushed away more focused support. I felt so betrayed and judged that I’ve been afraid of my friends. I felt unworthy of receiving care. I believed I was a crazy controlling monster, unable to receive support. Since I started to share with more friends, and those in my group support chat, I’ve finally started to thaw and realize I can receive support. I’m not impossible to take care of, my needs and my boundaries are valid and wonderful and can be honoured with love and care.
Though the waves of sheer terror and despair have temporarily subsided, it doesn’t mean this mountain I am climbing is any less great. I do have an impressively skilled and thoughtful network of support. Yet I find it tiring to receive so much support through the texting, emails, and phone calls. It’s both supportive yet exhausting and draining. Typing on the computer or texting on my phone is getting increasingly difficult the last few days as my right arm is swelling and going numb. Needless to say: it’s not only uncomfortable but takes a whole lot of work to not fall into despair about what that means.
I really wish for, and genuinely NEED more consistency and solid in-person support of an advocate-bestfriend -partner-wife-mom-TEAM to be physically by my side with this, holding this with me. This is often challenging for me because I’m a really sensitive introvert and it’s often difficult to be that engaged with other humans. Especially at this time, when I am even more sensitive. There is so much support I need, and I want to feel affirmed in the support that I need- and to keep receiving support when I have no social energy, when it’s too exhausting to receive or respond to messages. Please don’t fall away or give up on me when I can’t engage. I need so much support, and I also yearn for, and very much NEED to access the deep space of solitude and connection with myself, where I can access deep healing, rest, and wisdom. I just can’t do this with so much navigation of fundraising, communicating, advocating. I need help making my life and my process feel easier, without the pressure to offer immediate feedback or affirmation. Show me this is okay. It’s hard because I’m such a caretaker, and it’s a total transformation to be this dependent. I suppose it’s the highly-sensitive-introvert-caretakers dilemma who is now needing a lot of care. My, what lessons abound! I have experienced and witnessed this type of care in different times in my life and I do trust that people can come together especially if I am more vocal about what's really happening and what I need. We all need to be held in a web of care. I need those who care for me to be cared for just as fiercely or all with falter.
So, I’m lying pretty battered in the rocks right now, gently tended for a bit. My moon calendar, my passion and gift to myself and the world, is getting closer to completion, and with the help of my brilliant research team of Síle, KT and Tyler, along with various other practitioners and supportive friends, I am getting back on track with supplements, new regimens, diagnostics and protocols for healing this completely WHACK disease process. It also continues to be so much work to weave all the different opinions and pieces together, but I am honing in.
I am so so thankful to all of you. I am thankful for this temporary sanctuary of a home for holding me right now, the waters flowing through this valley, the shape of these hills, the rains, bursting persimmons and pomegranates, the neighbours on these streets that smile and say good morning. I’m thankful for this process of writing, to gather my thoughts, reflect, and find gratitude in all this. And I ask for your continued support: logistical support, preparing me the specific foods i need, sending me or helping me access the supplies and herbs and supplements I need, physical in-person support, (knowing that there are not all types of in-person care I can receive at this time, and it’s not personal) financial support to help me continue to have a secure place to rest, heal and thrive, access treatments, supplements, good food, practitioners, and to gather my strength to keep going, to keep connected to life and the earth, love, grief, joy, and creativity. I love it on this earth, I intend to stay. It’s all too much for my gentle and struggling little body and I truly cannot rest and heal while I’m running around stressed about finances, housing, and safety. Help me.

Additional posts & comments (173 entries) — click to expand
i have felt totally miserable. it’s a chore dragging myself around. i’ve been afraid of how much i just want to sleep. is it okay? is it too much? am i supposed to push myself to move and walk? people remind me that going through radiation (which i just finished friday) leads to cumulative fatigue and peaks the 3 weeks following radiation. i just had no idea it could be like this. and i think there’s still fine-tuning with meds to be done. the long acting morphine i was prescribed feels like too high a dose. but there’s no long-acter at a lower dose available so they tell me.
something big to share is that i’ve qualified for a trial. it’s being done all over the country and one base is santa rosa. it’s with a medicine called Trodelvy - (which is not the trial drug and that was the next one offered to me) and another one called magrolizumab. i have big and complicated and honestly just unreachable feelings about this. a couple doctors have told me i’ve got weeks left of my life. Other doctors say this could prolong my life with genuine quality. it could not work at all, like the others i tried. the disease progressed at a horrifying rate on the yew and keytruda. it could work in astonishing ways- like for people who i interact with on forums who have achieved “no evidence of disease” on trodelvy after trying many other courses of treatment. continued in comments…
i had another procedure this afternoon, drained another 850ml of fluid from around my lungs. this time went way better than the last; they went slower and didn’t puncture my lung like last time at the marin hospital. i felt calm and supported and feel some relief.
there is still a concerning amount of fluid build up around my liver, and there is excess fluid around my heart but not of great concern yet. i’m filling with rivers, i suppose.
my liver enzymes are very slowly going down which is encouraging. yet the tumours on my chest are growing and swelling and bleeding and it’s scary- though the wound care doctor said that they are neither infected nor necrotic, which is great.
i’ve had so many dear sweet friends visit today and hold me through it all. plus all the friends who flew into my room through bouquets!
i’ve had some good relief from pain and anxiety- and realized i was in so much pain when i checked myself in late saturday/early sunday that i didn’t even remember a lot that happened- i had a CT scan i didn’t know about.
it gets hard to type so i’ll sign off here, with one last thing- i’ve been hearing little bits about the salmon doing well, coming back to places they haven’t been seen in some years. dear dear salmon!!!! thrive, swim, go out to sea, come home. i love you with all the rivers of my being ❤️
-a stranger who cares. 💜
Be well. Take care.
g
Thank you for sharing these peices of yourself. They take on a life of their own when you so graciously release them into the world. Your words, your poetry, your art is inspiration and oozing with magical goodness and intention.
💙
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This is incredible, bebe. I love it so much🙏🏽
Exactly. Wow!
I’d love to do the same.
Baabaa-mashin Gwek Rosilynn Williams
♡
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♡available to be tattooed♡
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Will keep this in mind 😁
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#amarahollowbones #contemporarytattoo #contemporarytattooing #qttr #queerfashion #queermagic #tattoomedicine #cedartattoo #beartattoo #botanicaltattoo #linework #linetattoo #fineline #blxckink #iblackwork #fmlttr #blacktattoo #btattooing #blackworkers #finelinetattoo #queertattoo #queertattooartist
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#amarahollowbones #handtattoos #queermagic #queerhealing #witchytattoo #qttr #fmlttr #linework #linetattoo #knuckletattoos #witchcraft #witch #herbalist #iblackwork #contemporarytattoo #contemporarytattooing #queerart #queerartist #darkmother #ancestralmedicine #floraltattoo #botanicaltattoo #moontattoo
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#amarahollowbones #floraltattoo #wildflowertattoo #flowertattoo #goldenrod #goldenrodtattoo #aster #botanicaltattoo #botanicaltattooartist #contemporarytattoo #avantgardetattoo #qttr #queerartist #queertattooartist #fmlttr #sideboobtattoo #witchythings #herbalmedicine #herbaltattoo #botanicaldrawing #linework #colourtattoo
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.a drawing of the incredible @snarlingfox 🖤
#amarahollowbones #imbolc #newmoon #queermagic #apocalypticwitchcraft #queer #queerwitch #resillience #darkartists #traumarecovery #traumahealing #newmoonritual #mooncycle #mooncalendar #lunarcalendar #lunarcycle #astrology #wheeloftheyear #brigid #darkmother #witchcraft #witch #witchythings #linedrawing #contemporaryart #queerart #herbalmagic #ancestralmagic #traumasurvivor
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#amarahollowbones #floraltattoo #botanicaltattoo #wildflowertattoo #contemporarytattoo #lineworktattoo #naturetattoo #contemporarytattooing #coneflower #coneflowertattoo #echinaceatattoo #chickadeetattoo #birdtattoo #banjotattoo #folk #linetattoo #blackworkers #qttr #fmlttr
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#amarahollowbones #floraltattoo #botanicaltattoo #botanytattoo #flowertattoo #wildflowertattoo #queertattooartist #qttr #wildplants #naturetattoo #finelinetattoo #lineworktattoo #linework #contemporarytattooing #contemporarytattoo #bees #beetattoo #fiberarts #naturalfiber #nettletattoo #flaxtattoo #flaxflowers #yellowsweetclover #yellowclover #plantmedicine #plantmagic #witchythings
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#amarahollowbones #floraltattoo #botanicaltattoo #flowertattoo #queertattoo #violettattoo #qttr #queermagic #violets #contemporarytattoo #contemporarytattooing #fmlttr #ttism #linework #finelinework #linetattoo
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#amarahollowbones #bouquet #botanicaldrawing #wildflowerbouquet #bouquetdrawing #linedrawing #floraldrawing #botanicalillustration #linework #wildflowersbouquet #wildflowersfarm #wildflowerstea #wildgrass #wildflowers #wildflower #bees #honeybees #beesandflowers #florallinedrawing #blackandwhiteflowers
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#amarahollowbones #contemporarytattoo #contemporarytattooing #tattooist #tattoo #raven #raventattoo #blackraventattoo #linework #lineworktattoo #qttr #queertattooartist #blacktattoo #blxckink #birdtattoo #corvid #corvidtattoo #iblackwork #coveruptattoo #coverup #magictattoo #naturetattoo #wildlifetattoo
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#amarahollowbones #birdtattoo #birdtattoos #seagulltattoo #seagulls #flyingbirdstattoo #linework #finelinetattoo #qttr #queertattooartist
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#amarahollowbones #darkmother #darkangels #darkartists #contemporarytattooing #contemporarytattoo #qttr #queertattooing #queermagic #linework #lineworktattoo #prayerhandstattoo #witch #witchcraft #angelictattoo
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#amarahollowbones #contemporarytattoo #contemporarytattooing #willowtree #willowtattoo #weepingwillowtattoo #weepingwillow #treetattoo #linework #linetattoo #qttr #queertattoo #queertattoer #queertattooing #tattoomagic